for Chronic Fatigue Syndrome, Fibromyalgia, and Orthostatic Intolerance
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Pediatric Research Study Recruitment

  • Local Vasoconstriction in Postural Tachycardia Syndrome - Study at New York Medical College (Valhalla, New York) seeks adolescents and young adults with POTS ages 15-29. 

  • Fibromyalgia Family Study - This project seeks families with at least two blood relatives with fibromyalgia to participate in a genetic study. Participants must be at least 12 years old. Read more about this study by following the link to ClinicalTrials.org.

  • Juvenile Fibromyalgia: The Effects of Exercise Therapy   University of California at Los Angeles, Mattel Children's Hospital

  • A six-session Fibromyalgia Self-Help Course for Teens is being offered, free of charge in Bayshore, New York. This course is being conducted as a research study for treatment of fibromyalgia in teens. It has been developed as a collaborative effort of the Arthritis Foundation, Schneider Children's Hospital and Stony Brook University. Participants will be instructed in how to reduce pain; how to pace, prioritize and plan for fatigue management; how a positive attitude affects fibromyalgia; how exercise plays a role in feeling better and how you can better communicate with others about fibromyalgia. Special sessions for parents offered. To register, please call: (631) 632-8832.

  • Researchers: Please contact the webmaster to help us keep this page up-to-date.



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The Pediatric Network is run by Mary Robinson and Rebecca Moore Leibowitz. Our focus is limited to our supportive e-mail group. Although we no longer publish a newsletter, an archive of our articles and resources is available online. We encourage you to ask your health care provider about the newest medical information and how it may apply to you.



Disclaimer: The views in this website and forum are the feelings and opinions of the individual authors and do not necessarily reflect all of the current theories that are being explored and published. Ask your doctor or other health care provider about all medical information that you consider applying to your situation, including the information you read in our website and forum. We take no responsibility for the decisions you or your family members make about medical care. It is up to you to verify that the information you read is correct and applies to your unique situation.